Photos: Your Story
We’ve been noticing that on our blog that visitors to the site are identifying with the surgery photos of Mark, Carter, Ashley – In other words, people are seeing people and stories they are familiar with. Now, we want you to share your story and photo journey with others. Similiar to Carters photo journey and story , we are asking for you to share whatever you think might help someone else!
We are hoping to show, but not limited to:
1) Female perspective in general. Also, we’d love to have someone share their fertility and jpouch story. I know for women the fertility is concern when making the “elective” surgery decision.
Other perspectives from the female angle are body image issues, not to say men aren’t body image concerned, but with women it may be different?
2) Delayed surgeries, surgeries with complications, surgeries without complications. Perm ileo stories, strictures, fistulas, etc….
3) We didn’t document the pre-surgery journey and we’d like to show that part to others. Pre-surgery as in the tests done before the surgery and the time frame of those. The night before prep, backing of bag, family settling, etc…..
4) And these are only a few ideas, so share yours. As you can tell on this site anything goes as long as it benefits your healing, and the future healing of others!
If you are interested, please email Mark and Megan at mdhilton@gmail.com
“In a society that almost demands life at double time, speed and addictions numb us to our own experience. In such a society it is almost impossible to settle into our bodies or stay connected with our hearts, let alone connect with one another or the earth where we live” – Jack Kornfield
Photo via: rachel a.k.
Dee Kramer said
Does anyone know of a connection between drinking alcohol (a glass of Scotch or one glass of wine) and pouchitis.
Thanks
Dee
dkramer@uwaterloo.ca
Megan said
Hi Dee,
I haven’t heard of a direct connection between alcohol and pouchitis. But just because we haven’t heard of that connection, does not mean it may not exist.
Here is a link to a post we did about jpouch and alchol. The link will connect you to other forum posts on http://www.jpouch.org site. You should post your concern on jpouch.org and you’ll get some better feedback there.
http://ucstory.wordpress.com/2008/06/15/j-pouch-and-alcohol/
Take care,
megan
sally said
hi im 47 female and have had both surgery’s and now have a j pouch. my surgery was about 10 years ago. I had my take down in december and the following october i gave birth to a wonderful and healty baby girl by c section. i have also had four older children that have had the surgery. one of my daughters had both surgerys done in one and thus never had to have the illeostomy. she is doing great.
mary said
I HAD MY FIRST SON LAST YEAR AND THE ONLY WEIRD THINGS THAT I DEFFINATLY KNOW TO KEEP AN EYE ON WITH MY NEXT PREGNANCY IS THIS – because of my insides being rearanged during my surgery my son had limited room to move and stayed in the same position for monthes and came out with positinal torticallis and positinal plagio that took pt and 2 helmets to fix. hes fine but next time if that babys not moving around cause theres no room they need to do it manually. also i kept telling my obgyn how i had a bump that looked like a hernia near my stoma and they kept telling me it was probably the babys behind or somthing poking out. well they were wrong it was a stomal hernia from the pregnancy but my gi said it didnt need surgery unless it gets biggger or starts hurting me which it dosnt but it messes with positioning the appliance so i have leaks all the time and am going threw a couple of bags a day somtimes so i might just elect to have the surgery anyway because the hernia is soooooooooo anoying!!
Jimmy said
Back to Dee Kramers original question above. The correlation of the scotch and wine to pouchitis is the sugar content. In the j pouch group I am in Michael May has told us since he cut out sugars in his diet is has reduced his possibility of pouchitis greatly. Sorry to not tell you something else that wouldn’t involve you cutting out the Scotch and wine.
Happy New Year 09