UC to J-Pouch Story

Good news!

Posted by jenellepower on December 5, 2008

Things have been quite the rollercoaster ride lately but I finally got some good news!  I have been waiting since October to find out if I have Crohn’s in addition to UC, in which case the surgeon would not be willing to do the J-Pouch surgery.  After 3 opinions, it was determined that I don’t have Crohn’s and so we can go ahead with the surgery!  The surgeon is aiming to do the takedown in one surgery but if doesn’t go perfectly, it’ll be two.  Right now I’m scheduled for February 10th but I’ve asked to have it bumped back a couple of weeks so that I have more time to complete my prospectus (proposal for my dissertation) before I go in.  Although the idea of having another surgery is tiring, I’m so excited that the ileostomy is really only temporary!  I was really getting used to the idea that it was permanent.  Really, I know now that it would be OK if it was permanent but would really prefer to have it reversed.

I will be doing some pre- and post-surgery pictures.  My scar is really bad, so I don’t want to freak people out but I think it is worth showing.  It is so bad because it was an emergency surgery and it got infected and so had to be reopened.  The surgeon says that he’ll do his best to remove the scar tissue but if it happens again, he’ll refer me to a plastic surgeon.


3 Responses to “Good news!”

  1. Megan said

    What WONDERFUL news! That is so great to hear that you have the the comfort of knowing that you are just UC. I know Mark went through a quick scare with it maybe being CD and we had to ponder the idea of a permanent ileo – but like you said it would be okay but having the jpouch does offer some great freedoms.

    Also, I love that you said you are postponing surgery to deal with your personal/professional deadlines. I think that is a great point that people in your situation have the control to schedule the surgery and/or live with their situation until it fits their life. I know Mark and I decided to live 9 months with his nasty UC after he made the surgery decision b/c we needed his downtime to fit our work schedules and life.

    Good luck on your diss proposal- I found my proposal meeting was challenging but it was also really helpful in preparing a good study. In november I passed my diss defense so now I’m done – it was quite a journey and I can’t imagine doing it with your health issues. Hang in there because it is worth it!


  2. Casey said

    Congratulations Janelle! My surgery was post-poned 7 mo because they thought I had crohns and colitis, so i can relate. I never really understood how you could have both diseases. they actually want to scope me around the time of your takedown to convince themselves again. i just nod at this point. lol good luck!! everything will all work out for the best.

  3. jenellepower said

    Thanks for the nice comments, Megan & Casey.

    Megan, I think that’s a good point about the balance between dealing with UC and basically the rest of your life. Something to think more about….

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