UC to J-Pouch Story

Archive for the ‘J-Pouch’ Category

J pouch and coffee question

Posted by mark on June 2, 2008

I’m going to start posting here some of the most frequent questions I get and This future j poucher wrote this on the original photo journal at http://www.flickr.com/photos/markandmegan/2178758105/in/set-72157602651637141/

“Hi Mark and Megan, thanks for the great photos. I had this surgery 2 weeks ago, and I’m mentally preparing for the next steps (for me, they didn’t make the J-pouch during the first surgery — not sure why). I was wondering, reading about Mark’s Immodium and Metamucil dietary supplements: Mark, do you drink coffee? I’m hopelessly addicted; I love it. I’m concerned that my love affair with coffee will cause more frequent bowel movements after the takedown surgery. Any thoughts? I should probably start liking tea or etc., huh? “-eamills

My response “About the coffee, if you’ve been able to tolerate caffenine with sick then you should be fine. For me, coffee and caffenine have been a big and obvious enemy because they tend to tear up my stomach. I would base your ability to use coffee on how it affected you while you were sick. I do have alcohol every now and again, and I can hold fine. If I have too much my movements go instantly to liquid but that is somewhat like how it would be on a normal person too in a way.”

 

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Posted in J-Pouch, Jpouch, living with j pouch, Ulcerative Colitis | Tagged: , , | 1 Comment »

UC to J-Pouch Surgery

Posted by mark on May 11, 2008

                                 Mark’s Step 1 surgery was a laproscopic total proctocolectomy with ileoanal reservoir reconstruction (a jpouch) with a temporary loop ileostomy until the jpouch heals (‘takedodwn’ is 2nd surgery).   Step 1 was done in early July 2007 and he was in the hospital for 5 days .  Thankfully, he experienced no complications from this major surgery.   Step 2 surgery will happen after step 1 recovery.   See on the right side there are 3 series of Photo Journals documenting the three stages of Mark’s surgery process. Click on Photo Set 1: Surgery Colectomy to see the full set of photos and journal

 

Mark had Ulcerative Colitis (pancolitis) for 7 years (diagnosed at 24 years old, surgery at 31 years old), an active flare for 6 years with little relief from medicine (you name it, he tried it); 3 years into the flare the GI recommended surgery, it took another 3 years for Mark to committ to the surgery.  Many dietary and herbal options were tried as well.  Through this process it was important he was 100% sure he had exhausted all his options so that when he decided to have the surgery, he wouldn’t have any regrets.  It was a HUGE decision to make, and it was important to do it when Mark was sure all his options had been exhausted.  The reason it was so important to know this surgery was 100% the right option is because there can be many complications with this surgery and life with a jpouch or ostomy.  This has been the best decision for his health and quality of life.   Click on Photo Set 2: Inbetween Surgeries to see the rest of the recovery and life with a bag..      

 

In simple words, Mark’s disease, Ulcerative Colitis (severe pan-colitis) made him have chronic diarrhea, bleeding, and urgency.  Then the related symptoms from those main symptoms were of both physical and emotional in nature.  The surgery he had removes his entire diseased colon (large intestine) and rectum, and creates a new holding tank of stool out of his small intestine (called a jpouch).  Go to this site here if you want more info:  J-Pouch Illustrated.  And  Click on Photo Set 3: J-Pouch Surgery to see the full set of photos and journal.     

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Posted in Family, Friends, Ileo-anal anastomosis, Ileostomy, j pouch pictures, j pouch surgery photos, J-Pouch, Jpouch, Jpouch Surgery, living with j pouch, living with j pouch photos, Living with jpouch, Photos, Support Systems, Ulcerative Colitis | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , | 32 Comments »