Here is the recent post from a young woman who literally has been to hell and back with her UC, failed jpouch and now perm ileo. The brilliant thing about this post is that in the face of all her health issues, she has found renewed health and she is a true inspiration story. Let us explain, having a permanent ileostomy is worst case scenario for a “failed” j-pouch, and when you read things like this, it helps you to remember that a perm ileo will give you your life back.
According to CCFA only:
“About eight to ten percent of patients will have pouch failure, which requires removal of the pouch and conversion to a permanent ileostomy.”